In order to address the suffering of those with mental health problems, there needs to be a radical shift in the understanding of mental illness

-Jagannath Lamichanne

I have always believed that the challenge of dealing with mental health problems is their invisibility. Anyone who suffers from mental illness repeatedly questions: Does it exist? Do other people also suffer the same problem? Do people believe that my mental suffering is real? Does it make me different? It is to provide answers to such complex questions, to promote the visibility of mental health, promote their acceptance and find ways to address the problems related to them that I have been working.

I learned early on that mental health problems were of serious concern to many people around the world. For example, depression, — the most common of mental illnesses — if left untreated, can lead to disastrous personal, social and even economic costs. Further, the lack of treatment and right to live with integrity as an

"...our big challenge is the legitimacy of civil society voices who have been struggling for years demanding the recognition of human rights and the social condition of people with mental health problems."

“…our big challenge is the legitimacy of civil society voices who have been struggling for years demanding the recognition of human rights and the social condition of people with mental health problems.”

equal member of society for those who suffer is an infringement on their human rights. This is especially true in under developed and developing countries where resources are scarce and access to any kind of treatment is bogged down with stigma alongside financial burdens.

In 2010, the World Health Organization (WHO) released a report titled “Mental Health and Development”. It focused on the civil, economic, human, and health rights of people with mental health conditions. According to the report, “the majority of development and poverty alleviation programmes do not reach persons with mental or psychosocial disabilities.” It goes on to say that between 75 percent and 85 percent of people who suffer from a variety of mental health problems do not have access to any form of mental health treatment.

But what is most crucial is the impact that such problems can have on society and on personal well-being of those who suffer. The report suggests that those with “mental and psychosocial disabilities are associated with rates of unemployment as high as 90 percent” and that they are “not provided with educational and vocational opportunities to meet their full potential”.

The lack of treatment and the stigma associated with mental illness has pushed those who suffer to the extreme margins. However, the relevance of mental health as a global issue is further established when one examines the link between chronic physical illness and mental illness, for mental illness is not an isolated occurrence.

According to WHO, four chronic illnesses—cardiovascular, diabetes, cancer and respiratory illnesses— are responsible for 60 percent of the world’s deaths. Further, The Lancet series on Global Mental Health suggests that persons with these chronic illnesses have much higher rates of depression and anxiety than the general population. Major depression among persons experiencing chronic medical conditions increases the burden of their physical illness and somatic symptoms. More importantly, it increases medical costs and mortality.

The bottom line is that mental illnesses occur with chronic physical illnesses in many patients, causing significant role impairment, loss of productive hours and disability. They also worsen prognosis for heart disease, stroke, diabetes, HIV/AIDS, cancer and other chronic illnesses. But the majority of factors responsible for mental illnesses — like depression among those suffering from chronic illnesses — are not being adequately addressed.

It has been a hard job for us to educate people that mental illnesses are a result of both social and medical conditions. While improving the quality of mental health services in coordination with physical health services, we also need social attention, care and support to ensure the recovery of people with mental health problems.

For this, the WHO report suggests two development paradigms: the need to improve aid effectiveness in poor countries; and the use of a human rights approach (universally) that ensures there are sufficient resources to provide quality services for people with mental health problems as well as their inclusion in development programmes.

Still our big challenge is the legitimacy of civil society voices who have been struggling for years demanding the recognition of human rights and the social condition of people with mental health problems. There is a need to create a strong social force for radical changes in the mental health area.

(With support from Bidushi Dhungel)

 

Seeds for Hope

Lamichhane and Goetzke at the first Global Mental Health Summit

I still remember the first day I met Kathryn Goetze, founder of the International Foundation for Research and Education on Depression (iFred). It was in Greece on the 2nd of September, 2009, during the first ever global mental health summit; the early days of my entry into the then-newly emerging field of global mental health. I guess you could say that until then, when it came to issues of mental health, my understanding was traditional and shaped by negative public perceptions.

However, it was upon hearing Kathryn speak at the summit about the need to rebrand depression and her endeavor to give depression a positive brand with the help of the image of sunflowers, that I began to understand how we can work to re-construct social understandings of mental illness and depression. I began too slowly realize that societal perceptions of mental health are constructed with negative images and that with effective campaigning, could well be re-constructed with the use of positive imagery like that of the sunflower.

Since 2009, I have remained in constant communication with Kathryn, keenly observing her work. It was in 2011 that I finally got a chance to actually work with her on her global initiative — the Field for Hope campaign, where fields of sunflowers are planted to shed light on depression and simultaneously work to give the mental health related problems a more positive image. It was, however, only recently that I thought about exactly what the motivations for Kathryn’s involvement in the sector were. I knew that she was doing wonderful and innovative work to tackle stigma against depression but didn’t know why she was doing it. I caught up with her and what I learned was telling.

Kathryn had lost her father to suicide at the tender age of 19. “It was very devastating to me. He was a brilliant businessman, very close to me, and I knew there was something ‘wrong’ with him from an early age, but had no idea what it was,” she recalled. It was only after several years of study in her 20’s that she realized it was untreated depression.

By the time she was in her 30’s Kathryn began to apprehend that she too was struggling with depression, “a chemical imbalance of the brain that manifests itself in different ways through different people,” in her words. She had developed addictions – to food, alcohol and could not understand why for a long time.

That’s why when Kathryn launched her company she wanted to donate her time and resources to help educate people about depression. However, in order to do so, she would have to start a new movement herself.

The sad reality of the global context of depression is that even the non-profits and organizations working on depression are by and large straggled themselves by the negative stigmas and imageries surrounding depression. Kathryn found that “the nonprofits doing work in this area were often, ironically, depressing.” According to her, these non-profits focused more “on symptoms rather than the impact of treatment,” and fail to recognize the fact that depression is the “most hopeful disease there is — depression is treatable.” That fact is one that many societies across the world, even the most developed, are yet to come to terms with.

The majority of images of depression are depressing people–sad men and women, head bowing down, arms wrapped around the knees and almost crying, in dreadful black and white gloom. As an expert in marketing and branding, Kathryn set out to challenge and, thus, change the stigma surrounding depression. by creating an organization to help rebrand the disease through “educating other NGOs about branding and stigma, engaging celebrities and role models to talk about the disease, and teach the public about the biology of the brain.”

 

For Kathryn, it is this biology of the brain that is central to being mentally fit. “We must learn about creating and maintaining a healthy brain. Everything they think, eat, feel, and do affects the health of their brain.” According to her, the world is going to be based more and more on human intelligence, so creativity, brain health, and ability to solve problems is increasing ever more in importance. That is why Kathryn has begun this new movement to “Learn about and feed the brain in positive ways.”

 

This is not the first time such a rebranding of a disease is taking place. A major rebranding success was seen in fighting the stigma surrounding breast cancer some decades ago. Iconic symbols like the pink ribbon and the ownership of the cause by celebrities helped to quickly bring the disease to the mainstream and strip it of its negative stigma. Kathryn hopes to help enable the same for depression.

When asked what she would like to see accomplished in her life, she replied that she’d like to see an “event similar to ‘Stand Up to Cancer’, engaging celebrities from all walks of life to raise money and awareness for depression by speaking out on how to find hope when all else is going wrong.”  Further, Kathryn wants to be able to “live in a world where there are no suicides and people feel fine about getting treatment for their depression.” Her advocacy is undoubtedly on the right track to make this a reality.

In addition, Kathryn is working with companies to implement depression awareness and prevention programs in the workplace. She is also working on her Schools for Hope, “a curriculum we are developing to teach kids about how they can create Hope,” she said. Towards this end, she is also seeking support from consumer products companies.

Having been a part of the Field for Hope campaign, I can see its positive effects in encouraging communities to gather and talk about healthy brains and as a way to “honour those with depression,” as Kathryn told me. Overtime, the image of the sunflower will drown out the negative images of depression we see all-too-prevalent today. What Kathryn hopes for the future is to “have people think of a sunflower when they hear the word depression.”

Her work has been exemplary and encouraging in every way for the millions who are suffering. She vows to continue encouraging others to find the beauty in their darkness, and use the powerful force to create something full of light and inspiration for others.

I am proud to continue to be a part of her noble endeavor through my weekly blog beginning as of January 2014. I urge all to join hands to combat the greatest tragedy of the 21st century–depression.

-Jagannath Lamichhane

(With support from Bidushi Dhungel)

Jagannath Lamichhane is a mental health and human rights activist from Nepal. Currently, he is doing an MSC in global mental health, a program jointly run by Kings College London and the London School of Hygiene and Tropical Medicine, UK. 

World Health Organization Adopts Mental Health Action Plan

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We recently learned that the 66th World Health Assembly has adopted the World Health Organization’s comprehensive mental health action plan (2013-2020). The action plan is the outcome of extensive global and regional consultations over the last year with a broad array of stakeholders including: 135 Member States; 60 WHO CCs and other academic centers; 76 NGOs and 17 other stakeholders and experts.

As one of the 76 contributing nonprofit organizations at the forum, we are proud to have played a role in the development of this Action Plan as we feel it is a critical step in the right direction of eradicating the stigma of depression and meeting the needs of the 350 million worldwide living with the disease.

As part of our ongoing efforts to be leaders and advocates for the disease, we plan to have International Foundation for Research and Education on Depression (iFred) representatives once again at the mhGAP Forum in October to discuss the launch of the plan and its implementation.

The four major objectives of the action plan are to:

  • Strengthen effective leadership and governance for mental health.
  • Provide comprehensive, integrated and responsive mental health and social care services in community-based settings.
  • Implement strategies for promotion and prevention in mental health.
  • Strengthen information systems, evidence and research for mental health.

We look forward to continuing collaboration with WHO representatives and working towards solutions that will give hope to millions living with depression.

For more information about the Action Plan click here.

“Four simple words…I suffer from depression”

I recently came across this video of Kevin Breel speaking to a group of people at a recent TED-X conference and was blown away by his poignant account of what it’s been like living with depression and his hopes for a future without stigma.

As you may remember from my earlier posts, I lost my father when I was Kevin’s age to suicide and I consider myself a depression survivor. It is through the sharing of these stories and personal accounts that I believe we will be able to shine a light of HOPE for the 350 million worldwide living with depression.

I hope you’ll take 11 minutes to watch this video of Kevin. If you live with depression, someone in your life lives with depression, or you don’t think you know anyone living with depression – you need to watch this video. It will be well worth your time.

Watch Kevin’s video here: http://www.causes.com/causes/101854/updates/793004

 

 

In this light, I bring you Field for Hope

Kathryn Goetzke, iFred founder

When someone suffers from depression the effects ripple out to those they love.

I can still remember the moment. As I was getting ready for an upcoming weekend visit to see my dad, I called to see how he was doing. I knew something was terribly wrong when I heard a voice that wasn’t his. My mother took the receiver and told me the news that would forever change my life. My dad had taken his life.

My father was a successful businessman, but his pain was no mystery to me. He had resisted treatment because he did not want to admit to weakness in character. I cannot accurately describe in words the deep sense of abandonment, betrayal and total loss of self I felt when he died. I believe that, had he sought help earlier, he might well still be alive today.

Just weeks before he died he sent me a Valentine’s Day card telling me how much he loved me.  How he hoped I would never have to deal with the pain, deep regret and unhappiness he felt all the time. I carry the card with me as a reminder of his pain. It serves as my fuel to change the world for the better as a way to honor his life.

Depression is treatable, yet less than 25% of those with depression are getting treatment in part because of the stigma associated with the disease. This misunderstanding about depression is what prevented my father from getting treatment. As a branding expert, I know that by doing the following we can and will end the stigma of depression.

1. Use a universal symbol, the sunflower, around the world showcasing just how many are working for positive progress.

2. Engage celebrities, politicians, business leaders and activists to talk about their own depression

3.  Bring awareness of the biology of depression, and how our neurotransmitters, hormones, and brain chemistry are affected by everything we put in our body.

4. Focus on hope for those suffering from depression, instead of the negative depictions of depressed people that are often present in the media.

It is in this light I bring you Field for Hope. This global campaign asks people to come together and Pledge to Plant a sunflower to show honor and respect for the 350 million people around the world who live with depression. They need our help.

My dad had it all and did not deserve or need to die.  Do not let one more life be wasted. Pledge to Plant. Join our movement today at Causes.com/FieldforHope or visit www.ifred.org to find out how you can get help for yourself or someone you love.

Texting and Addictions

check out this wonderful video on Postpartum made by one of our supporters, Kim Guster Drolet!

How Our Brain is Wired for Addiction and Abuse, and Strategies for Defeating

Dogs Teaching Humans Teaching Kids to Read

Brilliant video about being alone

“How To Be Alone”.  View on our youtube channel!  http://www.youtube.com/ifredorg

Posted via email from iFred